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Keywords: Rare Diseases & Research

and Contributors: Fedela Duccio Bonifazi

and Target audience: Clinicians

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HemaFAIR Lecture 7 - Ethical, Legal and Social Implications (ELSI) and Data Protection for Rare Disease Data

• beginner
FAIR data Data management Open science Data reuse Data sharing ELSI Ethics European research projects FAIR principles HemaFAIR …